A: Utah Cancer Registry is the office designated by the Utah Cancer Reporting Rule to collect and maintain cancer information on behalf of the Utah Department of Health and Human Services. See our About Us page for more information.

A: The Utah Cancer Reporting Rule, R384-100 of the Utah Administrative Code, designates cancer as a disease subject to mandatory reporting by each state-licensed healthcare practitioner involved in the diagnosis, staging, or treatment of cancer. All reportable cancers and certain benign tumors diagnosed or treated in Utah must be reported to the Utah Cancer Registry.

A: We provide information directly to the RECA program when they submit a request to us with a signed release form from the claimant authorizing them to do so. We require the signed release form to provide the confidential cancer information to the RECA program. The DOJ recommends that you allow them to request your cancer information from the cancer registry, rather than retrieving the information yourself first, to streamline the process. There is a place in the claim form for you to mark “I WANT THE RECA PROGRAM TO CONTACT A STATE CANCER REGISTRY AND I HAVE SIGNED THE AUTHORIZATION TO RELEASE MEDICAL INFORMATION.” The DOJ will then contact us to request verification. More information about the RECA program is available on their website.

A: No. We are not affiliated with the RECA program and cannot advise on filing claims.

A: We provide a signed document that summarizes the information available in the cancer registry. This document is accepted by the Department of Justice for RECA claims.

A: No, the cancer registry receives reports from health care organizations with coded data items. These reports are created by the health care organizations using information in the medical records they keep.

A: You will need to complete the Request for Confidential Cancer Information form.

A: Our current turnaround time in responding to these requests is approximately 3-4 months. We appreciate your patience as we work through a very large number of requests resulting from the reauthorization and expansion of the RECA program in 2025. We are processing these as fast as we can, in the order they were received. Please note that the Department of Justice (DOJ) does not require you to obtain information from the cancer registry to file your claim (see the answer to “Does Utah Cancer Registry send information directly to the U.S. Department of Justice (DOJ) Radiation Exposure Compensation Act (RECA). You can opt to have the DOJ obtain information from us directly by providing them with a signed release form as part of your claim. This process is more efficient for all parties.

A: Submission of an SSN is not required. However, if you do not provide this information it may result in a delay in our ability to process your request or we may not be able to confirm the identity of the individual diagnosed with cancer. We will use the SSN solely for the purpose of identifying the subject of the request.

A: Responses are sent to the requestor using a secure email system that sends a message to the email address provided on the request form. Please note that these secure emails are encrypted and time sensitive to protect the confidentiality of the information. This means that your access to the contents expires after 15 days. You will need to open the email message and log in to the secure system within 15 days to retrieve the information sent to you. It is very important that you monitor your email inbox (including checking your spam/junk folder) and promptly open and retrieve the document to avoid losing access after the 15-day expiration of the secure message. See “How do I access the information sent via secure email” below for specific instructions on how to access the encrypted files.

A: The subject line of the email is “PHI Utah Cancer Registry Confidential Information”. Open the email and select the “Read Message” button or open the attachment. A CSEES login screen will open in your web browser. You should select the “Acknowledge” button to access the secure message. The email also includes contact information for support if you have difficulty.

A: Email us at [email protected] and we will resend the email.