Reportable Conditions
Cancer is designated as a reportable disease in the state of Utah (Cancer Reporting Rule, R384-100).
Utah Cancer Registry collects diagnosis, treatment, and follow-up information in accordance with data standards of the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program, the North American Association of Central Cancer Registries, and the Centers for Disease Control and Prevention’s National Program of Cancer Registries.
Which Conditions Are Reportable?
In accordance with the National Cancer Institute’s SEER Program and the National Program of Cancer Registries (NPCR) guidelines, cases reportable to the registry follow the SEER Program Coding and Staging Manual.
For a summary of reportable conditions, see below. For detailed reportability requirements, refer to the SEER Program Coding and Staging Manual.
How to Report Cancer Cases
- Information for Outpatient Facilities
- Information for Labs
- Laboratories may use NPCR’s list of reportable ICD-10-CM codes to identify reportable conditions. Lists are updated annually.
- Information for Hospitals
- Information for Registrars
What is reportable?
- Any diagnosis including any of the following words:
- Cancer
- Carcinoma
- Adenocarcinoma
- Carcinoid tumor
- Leukemia
- Lymphoma
- Malignant
- Sarcoma
- See additional terms below
- Invasive and in situ conditions
- All in situ or invasive neoplasms that have behavior codes /2 or /3 in the ICD-O-3.2 guidelines must be reported
- Brain, intracranial, and central nervous system (CNS) neoplasms:
- Benign and borderline primary intracranial and central nervous system (CNS) tumors with a behavior code /0 or /1) in the ICD-O-3.2 guidelines
- Neoplasms and tumor are reportable terms for intracranial and CNS because they are listed in ICD-O-3.2 with behavior codes of /0 and /1
- "Mass" and "lesion" are not reportable terms for intracranial and CNS because they are not listed in ICD-O-3.2 with behavior codes of /0 or /1
Dermatology
What is reportable
- Melanoma
- Early or evolving melanoma, in situ and invasive
- Hutchinson's melanotic freckle
- Lentigo maligna
- Basal cell carcinoma, squamous cell carcinoma, or Bowen’s Disease of only these sites:
- Labia, clitoris, vulva, prepuce, penis, and scrotum
- Vermillion border of lip
- Lip mucosa
- Other basal and squamous cell carcinoma is not reportable (including cutaneous skin of lip)
- Dermatofibrosarcoma, sarcomatus
Do not report skin primaries (C440-C449) with any of the following histologies:
- Malignant neoplasm (8000-8005)
- Epithelial carcinoma (8010-8046)
- Papillary and squamous cell carcinoma (8050-8084)
- Squamous intraepithelial neoplasia III (SIN III) (8077) of skin sites coded to C440-C449
- Basal cell carcinoma (8090-8110)
Other reportable terms:
- Dysgerminoma
- Gastrointestinal stromal tumor (GIST), unless stated to be benign
- Germ cell tumor, nonseminomatous
- High grade squamous intraepithelial lesion (HSIL)
- Intraepithelial neoplasia, high grade, grade II, grade III
- Reportable examples: AIN II/III, VAIN II/III, VIN II/III
- Do not report prostatic intraepithelial neoplasia (PIN III) of the prostate (C619)
- Intraepithelial neoplasia or atypical hyperplasia of endometrium
- Mature teratoma of the testes in adults
- Melanoma
- Neuroendocrine tumor, Grade I/2 (NET GR 1/2)
- Polyembryoma
- Squamous dysplasia, high grade (for sites other than colon/GI)
- Squamous intraepithelial neoplasia grade II & III (SIN II & III)
- Do not report SIN II & III of cervix and skin
The following conditions are not required to be reported:
- In situ carcinoma of cervix (/2), any histology, cervical intraepithelial neoplasia (CIN III), or SIN III of the cervix (C530-C539)
- Colon atypical hyperplasia
- High grade dysplasia in colorectal sites
- Prostatic intraepithelial neoplasia (PIN III) of the prostate (C619)
Historically Reportable Conditions
Reportability definitions change over time. Utah Cancer Registry collected and retains cases that met previous SEER or state-defined reportability definitions, regardless of current reportability status. The registry does not require submissions of newly discovered cases of historically reportable conditions.
- For example, borderline primary ovarian tumors diagnosed before 2001 were defined as reportable by SEER; Utah Cancer Registry retains these cases though they are no longer reportable to SEER. Benign and borderline primary brain and nervous system tumors have been reportable per state reporting requirements since the inception of the Utah Cancer Registry in 1966.